I'm not who I was.
I haven’t spoken much about my supposed narcolepsy lately.
There are a few reasons for that… one is that I’m waiting for a 2nd opinion specialist to accept me (which may take months) and I don’t really have any more “official” answers to share. Another is that, not to be rude, but I get weary of repeating myself. I am so glad that people care, but it is frustrating to repeat the same thing over and over whilst knowing that most people don’t really “get it”. I mean, even the doctors and I don’t entirely “get it” since I have some different quirks about me, so I’m sure it’s even more difficult for everyone else. Truthfully, all of this effort and repetition isn’t simpy bothersome, it physically wears me out depending on my state at the time. So please don’t feel offended if you ask how I’m doing and I give a very short or generalized answer. It may not appear as though I appreciate your prayers and well-wishes… I do. I’m just exhausted.
Recently, a precious friend told me about a special she recently came across on the Discovery channel regarding narcolepsy. I found it online and through that I came across Julie Flygare’s blog. She has some GREAT (brief and easy to watch) informative videos on a few aspects of what I deal with. So if you REALLY want to know, give them a watch! They are quite informative… and short!
What is Narcolepsy
Excessive Daytime Sleepiness (you can fast forward to about the 40 second mark on this one)
Communicating Invisible Symptoms
What is Cataplexy
Communicating about Cataplexy